Past Event

Vence L. Bonham – Social Justice and Genome Editing: Voices of the Sickle Cell Disease Community

April 16, 2018
12:00 PM - 1:00 PM
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Rm. 10-405A&B, Irving Institute for Clinical and Translational Research 10th Floor, Presbyterian Hospital (PH) Building, 622 W. 168th Street, New York

Speaker: Vence L. Bonham, Associate Investigator, Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health

Genome-editing technologies are reported to have the promise to cure, ease, and possibly prevent the burden of numerous genetic diseases. One of the first uses of genome editing could involve treatment of sickle cell disease. In this talk, Dr. Bonham will present findings from a recent study that investigates the knowledge, values and opinions of the U.S. sickle cell disease community about participation in genome-editing clinical trials and the future use of the technology in clinical care.

For further information or to convey suggestions about future speakers, contact Paul S. Appelbaum, MD, Director, Center for Research on Ethical/Legal/Social Implications of Psychiatric, Neurologic & Behavioral Genetics, Department of Psychiatry, at 646-774-8630 or [email protected].

Vence L. Bonham received his bachelor of arts from James Madison College at Michigan State University and his juris doctor degree from the Moritz College of Law at the Ohio State University. Mr. Bonham was a fellow in the American Association of Medical Colleges Health Services Research Fellowship Program. Mr. Bonham was a faculty member at Michigan State University in the Colleges of Medicine and Law. Since 2003, Mr. Bonham has served as an associate investigator in the National Human Genome Research Institute (NHGRI) within the Division of Intramural Research’s Social and Behavioral Research Branch. He leads the Health Disparities Genomics Unit, which conducts research that evaluates approaches to integrating new genomic knowledge and precision medicine into clinical settings without exacerbating inequities in healthcare delivery. His research focuses primarily on the social influences of new genomic knowledge, particularly in communities of color. He studies how genomics influences the use of the constructs of race and ethnicity in biomedical research and clinical care and the role of genomics in health inequities. The Bonham group has expanded to study sickle cell disease, a condition with a significant health disparity impact both in the United States and globally.

This event is sponsored by the Center for Research on Ethical/Legal/Social Implications of Psychiatric, Neurologic & Behavioral Genetics, and the Department of Psychiatry, Columbia University Medical Center. This seminar is part of the Seminar on Ethical, Legal and Social Implications of Genetics series.