Event Description:
Many biobanks, including the All of Us Research Program, which plans to enroll 1 million Americans, collect data under either broad consent (in which secondary research is often limited to “health-related” research) or blanket consent (in which there are no limits on secondary research). The former kind of consent raises ethical concerns about whether participants’ understanding of “health-related” research is as broad as researchers’ and both kinds of consent raise concerns about whether there are particular kinds of “sensitive” research about which participants might have moral, religious, or cultural objections. In this talk, Michelle Meyer will briefly discuss some of the ethical concerns and corresponding researcher responsibilities raised by “social science genomics” research, and then present the findings of a mixed methods study of the attitudes of health system biobank participants towards different secondary use of their data collected under broad consent.
Event Speaker:
Michelle Meyer is an Assistant Professor of Research Ethics and Associate Director of the Center for Translational Bioethics and Health Care Policy at Geisinger Health System
Event Information:
This event is a part of the Seminar on Ethical, Legal and Social Implications of Genetics led by Columbia University Medical Center's Department of Psychiatry and Center for Research on Ethical/Legal/Social Implications of Psychiatric, Neurologic & Behavioral Genetics.
For further information or to convey suggestions about future speakers, contact Paul S. Appelbaum, MD, Director, Center for Research on Ethical/Legal/Social Implications of Psychiatric, Neurologic & Behavioral Genetics, Department of Psychiatry, at 646-774-8630 or [email protected].
