Event Description
The concept of condition ‘severity’ is pivotal in determining access to, and future uses of, genomic medicine. Despite this widespread
usage, however, it remains an undefined, nebulous and poorly understood concept. This talk will present research data from the
Imagining Futures study, a project designed to explore the perspectives and lived experiences of families/individuals living with a wide range of inherited conditions, as well as those living with genetic ‘risk’. By highlighting the role of lived experience and its various interfaces with identity politics, this talk will bring a new lens to some of the key debates around current, and future uses of genomic technologies, in particular the use of whole genome sequencing as a screening tool.
Event Speaker
Felicity Boardman, Professor of Health Sciences at the University of Warwick
Event Information
Free and open to the public; registration required. For more information, email Maya Sabatello at [email protected].
Hosted by the Precision Medicine: Ethics, Politics, and Culture Project at Columbia University.
