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12:00 pm

Mahsa Shabani – Improving the Governance of Genomic Data Access for Research Purposes: The Case of Data Access Committees

March 20, 12:00 pm - 1:00 pm
Room #6205, New York State Psychiatric Institute, 1051 Riverside Drive
New York, New York 10032 United States

To ensure authorized access to genomic data, access review by data access committees (DACs) has been utilized as one potential solution. Based on the findings of interview studies with members of DACs based in North America, Europe and Australia, I discuss the core elements to be integrated into the fabric of access review by both established and emerging DACs, in order to foster fair, efficient, and responsible access to genomic datasets.

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