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Sandra Soo-Jin Lee – Beyond Consent: Diverse Patient Perspectives on Building Trust in Precision Medicine Research

April 26, 2:00 pm - 3:00 pm

Florence Irving Auditorium
1st Floor, Irving Cancer Research Center
Columbia University Medical Center
1130 St. Nicholas Avenue
New York, NY 10032

Speaker: Sandra Soo-Jin Lee,  Stanford University

The collection of biospecimens and electronic health record data is central to precision medicine research. A challenge is the ongoing under-representation of racial and ethnic populations in genomic research. Dr. Lee will discuss the VALUES Study of the perspectives of diverse patients and the role of trust and trustworthiness in next generation biobanking.

For further information or to convey suggestions about future speakers, contact Paul S. Appelbaum, MD, Director, Center for Research on Ethical/Legal/Social Implications of Psychiatric, Neurologic & Behavioral Genetics, Department of Psychiatry, at 646-774-8630 or psa21@columbia.edu.

Sandra Soo-Jin Lee, Ph.D., is a Senior Research Scholar and medical anthropologist who focuses on the social and ethical dimensions of emerging technologies and their integration into clinical practice.  Dr. Lee leads studies of public understandings of research using clinical data and samples, concepts of race, culture and human genetic variation, and citizen science,  commercialization of biotechnology and entrepreneurship. She is co-editor of Revising Race in a Genomic Age and is faculty in the Stanford Program in Science, Technology and Society.

This event is sponsored by the Center for Research on Ethical/Legal/Social Implications of Psychiatric, Neurologic & Behavioral Genetics, and the Department of Psychiatry, Columbia University Medical Center. This seminar is part of the Seminar on Ethical, Legal and Social Implications of Genetics series.

Details

Date:
April 26
Time:
2:00 pm - 3:00 pm
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Venue

Florence Irving/ICRC Auditorium
1130 St. Nicholas Avenue
New York, NY 10032 United States
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